Category Archives: Autism

The Test

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My youngest has been learning to drive for a little over a year. If it were left up to him, he’d never drive or get a car. He saw little value in getting a license. His father and I thought it important that he learn. “Having a driver’s license, and knowing how to drive is important.” He heard my words, but didn’t necessarily agree.

Practicing driving is nerve-racking for most parents. I desperately tried to keep my cool with him, but would occasionally (especially in the early drives) reach for the grab handle, or brace myself (maybe even close my eyes for a second?) as he drove too close to one side of the road or other, went too slow on the interstate, or struggled to change lanes with ease. I was proud that I rarely ever made an audible sound (unlike my own mom who was known for gasping, which made me more nervous, when I was learning to drive).

Our son finally got to a point where he could finally take the driving test. The first test we showed up for we learned he needed to take the knowledge test first (which we thought he’d already completed as part of the driving school classes he had taken), so we had to get that cared for. We practiced the questions night after night and a week later he took the test and passed. He was elated. Now we needed to take the driver’s test. We arrived to the appointment only to learn the evaluator was sick. He had been mentally prepared to take the test both times — aware of the importance of the test, and dealing with the nervousness you experience just wanting it over and behind you. He was disappointed but there was nothing we could do but reschedule the test.

We arrived at the testing facility. They said the test would take about 20 minutes. I found a nearby coffee shop and grabbed a drink to kill time. I was so nervous for my son. I wanted him to succeed. I knew he was prepared, but also nervous, and was unsure how it might go. I told him before the test that in the grand scheme of things the test means nothing. If he didn’t pass, we’d work on what he got wrong and he’d take the test again. It’s not like he was getting a terrible medical diagnosis or we were wondering where we’d sleep tonight, that it was just a test to prove he knows how to operate a car safely. I don’t know if it helped him, but it certainly helped me keep things in perspective.

He came back about 30 minutes later in the school car. He looked fine as he drove the car into the school garage. He came outside trying to keep a straight face. “You passed, didn’t you?” I asked. He smiled, “man, I was hoping to fool you!” His smile got as big as I’ve seen. He was so happy, tears of joy happy, relief, and pride that he had accomplished getting his license.

I was so happy for and proud of him. Being on the spectrum brought unique challenges to how he took driving instruction (particularly from his father and I), and learned how to drive, but he did it. The test seemed big and scary, but he overcame. Each success gives him that much more confidence in his growing independence. Now, if I could only get him to take the car out on his own (maybe even run an errand for mom?). 🥰

What’s a test your child experienced that helped them gain confidence from?

Laser Focused

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What is your child into?

My youngest is passionate about public transportation and envisions himself working in this field. His passion, knowledge, and desire to learn more and make a positive impact in this field is inspiring. One of the super powers kids on the spectrum have is being clear on their likes and dislikes.

He has submitted an application to attend a specialized camp in this field, it’s competitive and unclear to us how many other potential campers he might be competing with. The application required him to share why he wanted to go to the camp and what he hoped to gain. He also had to get references. The application felt more like he was applying to college than a camp quite honestly. It was a good exercise though. It forced my son to get clearer on how to articulate why he wants this (attending this camp), and what he hopes to gain from the experience. It’s been so long since I was his age, I forgot how little you know at that age (on wording and phrasing), and needing help to take what’s in your mind down on paper so that the reader can understand.

My son also struggled with the references from two perspectives—identifying who would be good references and how to get the person to actually agree to be a reference. He struggled with what I think most of us do — understanding people see our positive traits and are more than willing to share their thoughts with others, vs. it brings a burden or causes an inconvenience. We worked on him identifying the references (two teachers and a community member), and helped him craft emails to reach out and make the ask. He was nervous asking, but thrilled when everyone he reached out to came back quickly agreeing to be a reference and one going as far as providing a written recommendation. It was wonderful to see his joy.

We don’t know if he’ll get into the camp, but are optimistic. Regardless of what happens he’s gained some skills (articulating his desires, asking for support), and knowledge (he can do it, and people are willing to help support). If he stays laser focused on continuing to grow in these areas, I believe he’ll be just fine. 🥰

How are you helping them to grow through their interest(s)?

Model Building

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What is your kid enthusiastic about?

When my youngest was small (ages 3-8), he was obsessed with Cars (yes, capitalized, because I’m referring to the Pixar movie). 🥰 He developed a love of (lower case) cars as a result of the film (the best my husband and I can tell). This love of cars went up through his early teens. I can remember the countless hours of him playing with matchbox-sized cars (many in the form of Cars characters), lining them up, creating storylines, and making his own story with them coming to life (stop motion app, using mom or dad’s phone).

He’s older now and his tastes have changed. Cars (upper or lower case) no longer hold his attention. His loves have changed: geography, maps of the world, to trains, and then subway/transit systems. He is so interested (remember being on the spectrum, a super power is having clarity about your passion), he is participating in community board on transit for teens, various community events (openings, trivia nights, etc.), and wants to go into this field (city planning, transit advisor) as a career.

He has started collecting model subway cars to add to his already vast transit map collection. For his birthday, he asked for more models. He has traditionally wanted only completed models, but we thought we’d get him a kit and see if he’d enjoy building one. My husband has built model kits before (planes), so our sons have seen some of the joy this brings to their dad.

When our son opened the kit, we thought our chances were 50-50 that he’d want to build it, vs. having us send it back. I asked him if he’d like to work on it together and he said, “I’d like to work on this with dad because he’s done these things before.” I smiled—partially because he wanted to build it, and two, he wanted my husband’s help and not mine (I’m sure I could have helped him, but not sure I would have been the best partner). 😊

He and my husband set out working on the model subway car each night. Watching them work together on the build was something. There was excitement (for the model taking form), stress (oh no, we threw out the roof think it was trash, go check the recycling!), relief (thank goodness it wasn’t recycle pick-up week), and quiet love as they worked on the model figuring it out piece by piece. This model build may be the most special one for my son (and husband), since they built it together.

What have you and your child done together that’s been special and/or brought you closer?

Figuring Out Friendship

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Have you ever parted ways with a friend?

Parting has been easiest, for me, when our locations and situations took us different places and nothing was explicitly said. The door open to reconnect or resume the friendship is there should the opportunity arise. It’s hardest when betrayal or some type of perceived hurt has occurred — coming back from it might not be possible. Then there is everything in between.

My youngest in high school has reconnected with an elementary classmate, and together brought a third, newcomer, into their group. My son enjoyed getting to know his new friend, even walking home from school a few times together, until he didn’t. He started seeing differences between he and this new person which made him take an inventory for what he wants in a friendship. This new friend appreciates women based on looks more than anything else, and likes watching/listening to crude humor on his phone. I can’t say this is untypical of any teen, but what struck me was how off putting it was to my son. My son shared his friend had been vulnerable with him, and he was in turn, but then the friend started teasing him about what he opened up about, making him regret sharing at all. The final ‘blow’ was when the friend kept trying to get my son to engage with him during lunch period, and my son wanted no part. My son shared, “I don’t think I want you to be friends with him anymore.”

I’ve often felt my son wanted more friends, but what held him back was some challenges he faced by being on the spectrum (such as missing social cues), what I found was my son having clarity in what he wants in friendship and not being willing to settle.

We talked about the differences between he and his friend, with the main one being my son had had the good fortune of having teachers, and caregivers that modeled healthy relationships and strong emotional intelligence — give him tons of tools for his toolkit. His friend, hadn’t had these same resources and may not have the knowledge my son has. The comparison I made was my son have a full tool belt, uniform, and protective gear, and his friend being naked. I shared this with my son, so he would have empathy for his friend. He could either help his friend grow with his knowledge or part ways because the effort wasn’t worth it or the friend wouldn’t be open to it. My son took it under advisement and decided he wouldn’t proactively engage this friend, but wouldn’t outright tell him the friendship is over either. So far it’s worked out. Neither boy has really engaged the other and the loss of a friendship doesn’t seem to bother my son (or the other boy, best we can tell), at all.

Ending a friendship is never easy. Making a new friend isn’t easy either. How are you helping your child navigate friendship?

Instagram Catfish

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My youngest is on the spectrum and struggles making strong connection with his peers. This can be especially hard when you’re a teen, going through puberty, exploring your sexuality, and becoming more independent.

Our youngest son is one of the most ‘innocent’ people you could meet. His emotional intelligence is through the roof (he has empathy that is beyond compare), he loves animals, and spends countless hours online learning about world geography, other cultures, transit systems, and follows politics. He has very little interest in things I think most parents of teens fear — nudity/pornography, alcohol, or drugs.

My husband and I are aware our sons are on Instagram, but thought it too, particularly for our youngest, was innocent. We found out we had reason for concern when my husband saw our youngest son texting (chat function) with another user and appeared to be trying to hide what he was messaging from his father. My husband decided to inquire who our son was talking to while we were at the dinner table. My son got very quiet and seemed embarrassed. He shared he had started to confide some of his secrets to this stranger including his wants and desires because it felt ‘safe.’ When we challenged our son on who this person was, how old, etc., we learned this person was in their 30s. I appreciated my son’s honesty but was beside myself, as we’ve talked to our boys about being online and never sharing information or trusting who is on the other end, especially if you haven’t met or seen them in-person. I was more upset by the adult on the other end who allowed/continued the conversation even though he knew my son (based on his age being on his profile) was underage. Beyond the emotions I was experiencing, I could see how lonely my son felt, and how he’d been looking for an outlet to share his feelings and thoughts with others. outside mom and dad, and while I get it, it still terrified me.

My son realized the errors of his ways, blocked this ‘friend’ and gave me his login information so we can monitor the app and ensure he’s connecting safely with others his own age. He wants his independence but realizes he lost some of our trust but hiding this from us. We’ve always advocated for our kids to talk to us about anything and everything, even if it’s uncomfortable (for them or us, especially us (meaning my husband and I)). He feels like he lets us down, and we feel like we let him down (how didn’t we know?, how could we or should we have been helping him?, etc.).

We talked about making mistakes, that’s how we learn and grow, and while he’s becoming more independent, he still has knowledge to gain. He agreed, though still feeling embarrassed and ‘stupid’ for not knowing better. We just reminded him now he does.

Social media, like any technology has its pros and cons. I like that it allows users to connect on their interests or passions. I’m not a fan of some of the unforeseen risks inherent with letting younger folks (whose frontal lobe hasn’t fully formed) converse easily with folks who may be legit, or may be a catfish.

I’m still working to recalibrate my brain around what we learned. Some of my son’s innocence is gone, but I should expect that with age. I’m reminded I need to stay on top of how my son is connecting with others and getting his needs met (e.g., making friends that allow his to be himself, share openly, trust with secrets), and what my husband and I (and his therapist) can do to help.

How do you keep a pulse on your teen’s interactions on social media? How are you helping them know the dangers, while giving them freedom to explore who they are and their interests?

Relief

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How did COVID impact you and your family?

I feel like my family was one of the lucky ones. We have a house (vs small space), with a yard, and an ability to get out and walk around our neighborhood without issue. I know for many others this would have been a luxury during COVID. I’m still coming to terms with the impact it had on our kids (we all are). How did this disruption change their course in life, or did it? How many of them are dealing with undiagnosed stress, anxiety, etc.? Including my own kids. They appear fine, but what if they aren’t?

A big part of parenting is helping your child and trying to keep them safe. COVID threw us all into unchartered waters and it feels like we’ll be finding out the true impact of the pandemic in the coming years. The pandemic impacted/continues to impact all of us.

Like many health care workers during the pandemic, our youngest son’s therapist decided to leave the profession. They needed a change. We couldn’t fault them. Finding a new psychologist for our son proved challenging—therapists not taking new clients, long wait lists, and more. And the days of “seeing if the therapist is a good fit” seem long gone, when you feel fortunate to have gotten an appointment with anyone at all.

After many calls, emails, and follow-up calls and emails, and research. We found someone for our son. What a relief. At least for now. My son is getting to know the therapist, and we’re providing feedback to them on what’s working for my son and what isn’t. What gives you even more relief is my son being advocating for himself and his therapist being open to the feedback.

How did the pandemic impact your child? What brings you relief now that we’re coming out of it?

I will be stepping away to enjoy Spring Break with the family and back later this month.

Reconnecting

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Reconnecting with old friends feels wonderful.

Our youngest is enjoying high school, though he can feel a little lost sometimes with the large number of students and teachers that can only give each student so much attention.

He was asked by his middle school to come back and be a student judge for the school’s STEM fair. While interested to see what the students came up with, he was more excited to see former teachers, admins, and younger classmates. He was greeted like a rock star, it didn’t hurt that he’s grown considerably taller since he left which added to him standing out. He gave and got big hugs from teachers and admins. I lot of ‘hellos’, ‘how are you?’, and ‘what’s high school like?’ from his old classmates. He relished being seen, acknowledged, and valued (wouldn’t we all?). It was so awesome to witness.

The school is looking for opportunities to bring more of my son, and his peers back on campus. I can share from his experience is was more than worth it. He may have helped judge the competition, but reconnecting was the true prize.

Where does your child feel seen, acknowledged, and valued?

Public Speaking

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How comfortable are you speaking in front of others?

My youngest had an opportunity to return to his former middle school to share his experience and how prepared he was for high school. He was eager to go in hopes he’d see some former faculty or classmates. The community event for the school was moms (no students past or present), and no former faculty and administration. It was a bit of a bummer, but he loves the school so much he easily adjusted talking to new teachers about his experience.

The event had us sit down in a circle and the head of school asked us to give our feedback on why we’d picked the middle school, the best thing about the middle school, and how well my son was prepared for high school. I provided my input, but turned the floor over to my son since I knew the parents would like to hear from him directly. He did a great job sharing his thoughts, and needed little prompting to answer questions and provide insights. He went from looking down at first when he responded, to making eye contact, to joking with the crowd towards the end. It was like watching a flower bloom. I couldn’t help but smile.

On the way home my son and I discussed how things went. We both reflected on how some of the questions asked helped us see even more benefits of him going to the school than we’d previously realized. He was proud of his ability to talk in front of so many strangers and attributed his comfort with the confidence the school gave him regarding who he is (e.g., you’re great just the way you are). I was so happy for him that he recognizes the gifts the school has given him, how he’s been able to use them to excel in high school, and be confident in who he is enough to do public speaking at such a young age. It makes me wonder what else he can do that even he doesn’t know yet. 😊 I can’t wait to find out.

What gives your child confidence?

Crash Course

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Getting into an accident is the worst, right? Assuming no one gets hurt, it’s still stressful with insurance, police, getting the car to the shop for repairs, and more.

Our youngest is learning to drive. My husband and I have two different approaches with our son. My husband wants to take things very slow. I want to take things slow, but push my son so he can get better at driving, and gain confidence in his skills.

My youngest and I were out for a drive. We started in an empty parking lot. He did great. After driving around for a while, I thought he was ready to venture into some neighborhood side roads. He continued to do well. He entered a few arterials a little fast, but we talked about the need to slow down and enter them more cautiously. We continued driving on. He drove to four way stops, down side roads, and was doing so well we decided to keep going as we got closer to our house.

Following a four way stop, into an even less busy part of our neighborhood, a car came up behind us. My son noticed it and I told him not to worry about them. When he turned up a hill he was going at a snail’s pace (I’d be surprised if he was going much over 5 MPH). Knowing the car was still behind us, I encouraged him to push on the gas pedal to pick up the pace. We had originally planned to take the first right turn but missed it because another car was parked too close to the intersection. We decided he’d make the next right. Instead of slowing down at the arterial, he came in fast and knew he need to correct his position or he’d hit one of the parked cars on either side of the street. I yelled, “brake. Brake. BRAKE!!!” He started to brake but too late and we ended up tapping one of the parked cars.

Adrenaline kicked in. My son was upset by what happened. I was upset I was going to have to knock on a few doors to see whose car it was. We both calmed down. I knocked on a handful of doors, no answer. I left a note of apology and how to contact us on the windshield of the damaged car. I drove us the rest of the way home. My son let me know he heard me saying brake, but he couldn’t compute what he needed to do with his body. It was insightful but I told him, you have to be prepared to stop suddenly at all times. We decided it was something he’d need to practice.

My husband wasn’t thrilled with what happened. He never said I told you so, but could see he was thinking it. I had to reassess was I pushing my son too much? Or was my approach having a negative impact on his abilities? We decided my husband would take him on his next lesson, which he did. They practiced parking. I took my son back the following day to resume driving. I didn’t want the fender bender to move him back to square one. He asked following if he could drive with me again, and when I thought he’d be ready for the side streets. I told him yes, and that we’d work on sharping some of his skills and reflexes before we went back out on public roads.

My son wants to be pushed. He knows he needs it to conquer things he’s uncomfortable with (I believe many of us can relate). My husband wants to go slow, protecting our son, but also quelling his discomfort with our son’s modest driving experience. We’ll have to continue to work with our son together and somehow blend our techniques. The good news is, we have time. There is no rush per se for him to get his license anytime soon. We’ll take it one driving lesson at a time.

How have you gotten your child to work through their discomfort? How do you balance helping them grow while recognizing your own discomfort in their capabilities, and struggle with how to help them be better?

Let’s Talk About Sex

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Ick. Gross. Pass.

That’s how I would have responded if my parents had wanted to talk to me about sex beyond “the talk” which was more focused on the mechanics. After that talk, which felt more like a trauma, I couldn’t look at either of my parents for weeks without getting grossed out.

My husband and I knew we’d have to better communicate with our kids about sex, intimacy, love, and all that goes with it. Knowledge is power, but it can feel oh so uncomfortable to try to talk about sex with your kids.

Thankfully there are lots of good books and classes for parents on this topic, and culturally it’s more accepted (and encouraged) to talk more openly about sex with our kids. My husband and I would have to work through whatever discomfort we have.

Our oldest continues not to want to talk to my husband and I about much of anything. We have to demand he sit with us at the dinner table and tell us at least one thing that happened that day. It’s pulling teeth. Our youngest is more talkative and willing to engage. What pleasantly surprised my husband and I was when our youngest shared that he was learning about sex in his health class. I wasn’t aware they taught sex in high school, but I’m grateful. The class goes beyond body parts and mechanics, but educates the students on STDs, prevention/protection, terms, consent, and more. As my son was learning, he had questions. He wanted to ask his questions in a safe place so he asked his father and I at home.

He was interested in what certain terms meant, our experience with sex (how hold were we (generally), were we scared, etc.), and more. There was a discomfort I felt at first talking to my son about some of his questions but quickly relaxed as I could see what I was sharing with him was helping him. We talked about why girls (or boys) have sex — they want to, they think they have to (it’s expected, or the other person won’t like them), they feel pressured (their peers are doing it and therefore they should to), or they are curious (what it feels like, etc.). We talked about terms. We talked about where he was with his own curiosity/interest. He made me feel better. I hopeful he’s more equipped to make informed decisions about his body and help any future partners feel good about their choice and experience with him. Now, we’re trying to figure out how to share the same information with our resistant older son. Pulling teeth, but we’ll do whatever it takes to have this (getting less uncomfortable) conversation.

What helps you when you have to have an uncomfortable talk with your child/teen?