Category Archives: Challenges

Team Work (Collaboration Part 2)

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Do you work well with others?

My youngest and his co-director continue to have communication challenges. It came to a head when they disagreed on something and his peer got upset with him. As he was recounting what happened to his father and I it became clear he knew why they had been having so much trouble getting on the same page. The co-director misheard something he’d said early in the process and she thought he was deferring all decisions to her and all the responsibilities that go with them. I would have been unhappy too. She shared with my son that he would send out a list of things that still needed to be done, late at night, before he went to bed, thinking she and the cast would see the messages in the morning, but her ADHD caused her to need to respond to the message(s) and take action immediately even if that didn’t need to happen. “I feel like I’m a bad person,” my son shared. “I had no idea she was going through this. I just thought she was up late like I was and wanted to respond.”

There’s no way he could have known. Communication is complex and being open and honest isn’t always easy. We referred back to our previous discussion on this topic. “Have you had a heart to heart with her like we talked about?” we asked. His response indicated he’d hoped the problem would resolve itself. I understood. I, too, struggled with these types of conversations when I was younger. We reminded him that while they’re hard to have, once done, it makes moving forward much easier.

I’m not convinced he and his peer are on the same page still, but the show is coming up in two weeks and he knows he has to power through. At least he has a better appreciation for what his co-director is going through and can bring more empathy (which he’s good at) to how he collaborates and communicates with her.

How do you help your child navigate challenging conversations?

Exceeding Expectations

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When did your child last exceed your expectations?

My youngest, who is on the spectrum, is doing an exchange in a foreign country. Spectrum kids has several gifts that make them special including knowing their likes and dislikes, ability to concentrate (on likes with ease) and challenges being vocal about dislikes, having a harder time engaging in dislikes. You know that filter you get as you grow up that tells you when to be honest and when to hold your tongue? My son doesn’t really have that. He’s sometimes brutally honest with no intention of hurting anyone’s feelings, but just speaking his mind. 😬

I wondered when he left how he’d fare doing an exchange. We had the exchange student come here first so my son and he could get better acquainted. My husband and I have set out to have our kids be independent, and tried to give them confidence in their capabilities and pushing their comfort zones. I thought going overseas would be good “comfort zones” pushing for my son.

I knew when my son went overseas he’d be asked to do things he might not like doing — going places he’s not particularly interested in, or to try something (food, activity) he would prefer not to. I was mildly concerned he might struggle, and when he gets overwhelmed it can be difficult to experience (tears and/or anger). Would he be overly honest?

When he arrived in France, he sent a text message and a photo. The host mom sends me pics now and then too, which helps. He asked the following day when we should talk, and I recommended we talk one day over the weekend. He agreed. If he is struggling in any way, he’s doing a great job of keeping it from us. I expected to potentially hear from the host mom of some issues, but so far, there’s been nothing other than how his French is coming along. 😊

This is the first time he’s been away for us for this long, with a family he barely knows. It would be challenging for most of us to adjust, but he’s exceeding our expectations and seems to be thriving. He does text with pics from the day (if they did any exploring), but the messages and exchanges are short implying he wants to share vs needs to share and/or is struggling, He continues to amaze me as he grows. I, too often, think something may be more difficult, or too big a challenge for him and he proves me wrong. I hope he keeps doing that (along with me realizing, he is doing the work that will allow him not only independence, but an ability to thrive on his own).

When did your child last exceed your expectations? How are you adjusting your mindset or approach to your child as a result?

Foreign Communication

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My youngest has been accepted into a foreign exchange summer program. He’s thrilled to go explore a new country, and being a kid on the spectrum lies the (potential) problem.

When he gets an idea in his mind, particularly in something he’s interested in doing, his mindset becomes more rigid and narrowly focused. It can be a strength (knowing how to navigate a large public transit system without ever having to look at a map or timetable) and a weakness (going into a situation where he doesn’t have control). Note: many of us (neuro-diverse or not), struggle with control and a rigid from time to time.

We met the family he will be living with over video. The boys started communicating via text following. My son went into “all things travel” mode — asking questions about where they could travel to, transit options, and ideas he had. Yikes. I can only imagine what the host family is thinking.

The good (great) news is that we have our exchange student who has been with us, and knows something about connecting with host families prior to arriving. 😊 My son was sharing some of his disappointment in how some of his initial excitement had waned and he wasn’t hearing much from his peer. Once our exchange student and I listened she offered some ideas (I did too, but think he really took her ideas to heart). “Share something about you. Take a picture of your walk home. Show them the neighborhood or where we go to school. Ask them to show you where they live,” she recommended. He recognized his communication had been one-sided up to that point (all about him and his interests), and he understood the was value in starting over and them getting to know one another. He sent a text to say as such and felt better about things.

It is hard when someone you love so dearly struggles with understanding social cues, but I love that our exchange student was here, willing to help, and my son willing to listen. He has a new friend/sister who can help him (assuming he continues to be willing to ask). 😊 The rigid mindset, he’s aware of and we’ll continue to work on making it more flexible.

What’s hard for your child? How are you helping them work through or overcome their challenge?

Chopping Wood

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Every good campfire needs wood, kindling, and fire. Everything worth learning takes patience, persistence, and love.

My husband learned to chop wood for fires growing up, whether it was for heating the house, or for cooking and warmth camping. My youngest is now learning how to chop wood, though for a different reason. He’s going to a rail camp and will need to drive and pull railroad spikes as part of the experience. We thought chopping wood — using an axe and learning to handle the weight, and movement — would be a good place to start. We also realized we’ve had few opportunities to teach our boys the skill of chopping wood, since it’s relatively easy to buy bundles near camp sites, and our house doesn’t have a fireplace that uses logs.

My husband and son went into our backyard to practice. My youngest reminded me a bit of myself when I was young and learning new things, being cautious and getting frustrated during the learning process. My husband worked with my son. Being on the spectrum, he can struggle with fine and large motor skills particularly when learning something new. My son frustrated that he was struggling and my husband irritated his guidance wasn’t yielding the intended result. But that happens, right? As parents we try to guide our children through life and it can be infuriating when they struggle to (or flat out don’t) understand, or listen, or follow our direction. We can get angry (because we’re human and it’s super frustrating when our words don’t land), but it also provides us an opportunity to stop, step back, and determine how to go forward. Continuing to do the same thing over and over and expect the result to be different is the definition of insanity, right?

My husband and son reached an impasse and decided to resume chopping wood the following day. My son will get the hang of it. My husband’s words will get through, just slower than he’d like. While the experience might be a bit painful for them both now, the outcome — my son learning to chop wood, and getting himself ready for what he’ll be doing at rail camp. I imagine my son will be proud he can participate with greater ease at camp ( than if he hadn’t learned), and his father will feel good about teaching his son another skill he can use throughout his life.

Teaching your child can be challenging and rewarding. What have you taught your child that pushed your patience, but paid off in the end?

The Perfect Gift for Mom

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I saw a bit on Late Night with Stephen Colbert regarding Mother’s Day gifts. The segment showed what mom’s really want — quiet, alone time, rest. What gift allows mom to do this? Being put in a water well, where no one can find or bother her. 🤣

I craved alone time on Mother’s Day, particularly when my boys were younger, and responsibilities seemed more intense — rarely having time for a breather, respite, or relaxing (thinking it was pretty selfish of me to want any of those things). I felt guilty about wanting the alone time, but knew I needed it. Burn-out from always being “on” in those early years was rough.

Getting the gift of going to a (water) well wouldn’t have been my idea of a good time, I’d probably think “what happens to everyone if I can’t get out of here?”, 🫠 but seeing a movie, going for a walk, or just doing absolutely nothing sounded WONDERFUL.

I asked for it every year, starting in the early years, and my family knows that’s pretty much what I want every year (I don’t even have to ask).

Being a mom is challenging, amazing, and sometimes exhausting. What’s your idea of the perfect Mother’s Day gift?

Parental Support

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Who has helped you through your parenting journey?

We are fortunate to live in a part of the country that has a structured program called Program for Early Parenthood Support (PEPS). It brings together parents with newborns that are close in age (1-3 months, typically). We were able to join a group when our oldest was born.

The support we received from the official PEPS program (which, at the time, ran 12 weeks), with a moderator, topics, sometimes guest/expert speakers, and families (including babies) meeting once a week in each other’s home was invaluable. Following the program most of the parents in our group wanted to keep meeting. Just getting together, knowing we weren’t alone, having others to bounce questions, challenges, and fears set the foundation for a strong community.

Our oldests are seniors in high school now with graduation just around the corner. It’s bittersweet to realize how much time has gone by. The slowness of the early years, the angst of sending them off to school, puberty hitting, teen angst, and now coming into their own.

When we first started meeting, post program, everyone attended. We talked about the kids, because — for the most part — they were too young to know what we were talking about or in another room playing games. As they got older some of the kids connected, others didn’t. The kids would come, but you knew they’d probably rather be somewhere else. 😊 When the kids reached middle school we started to let them decide if they wanted to join us or not. The connection of this group was more meaningful to us parents, because we wanted (needed?) to talk about the kids and struggles we faced, joys we were experiencing, or things that surprised us (my kid is capable of that?!).

None of us know what our kids will eventually end up doing, where they’ll live, etc.. We know just because they are now “adults” we won’t have a say, but hopefully modeled getting support to thrive in tough environments (not sure many environments tougher than parenting). We still very much want to stay connected with this community. We’ve been through so much together.

Parental support is what gets you through the tough times and lets you know you’re not only, and you’ll figure it out. It’s those people — family, friends, doctors, teachers, coaches, mentors, that help us get through the journey together.

Who supports you and your family? Who do you support in return?

Don’t Fear Failure, Be Terrified of Regret

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We all fear failure, at least to some degree. Whether it’s fear of embarrassment, or confirming a negative doubt or flaw we think about ourselves, we’ll often go to great lengths to avoid it.

I’ve thought of that in my early days of parenting, wanting to be ‘perfect’ or as close to perfect as was possible and being terrified of ‘failing.’ It required me to open my mind by listening to our parents further along in their journey, my own parents, and allowing myself to pivot from fear of failure to awareness to the person I wanted to be (and how I’d show up for myself, spouse, and boys), and the experiences I wanted to have as a parent. I could ‘fail’ or make mistakes any time (we’re human), but being aware forced me to be intentional, which helped me in what actions, words, and engagements looked like — I didn’t want you to have any regrets parenting my kids.

Now my oldest is figuring out his path in life post high school. I shared him a wise saying I heard, “don’t fear failure, be terrified of regret.” I don’t want him to take the easy route because the other is hard, scary, or he might fail. I shared he should want to be challenged (because easy is boring), and if he tries and it doesn’t work out, he won’t regret it, but if he never tries he likely will.

Parenting and life can be scary at times. Wanting to do and be your best all the time an admirable goal. Letting intention (how, when, and where you want to show up for yourself and others) be your guide doesn’t mean you won’t make mistakes, it just means you’ll minimize regrets you experience in life.

What fear did you face and overcome to avoid regret?

I’ll be off again spending time with family during Spring Break and will be back later in the month.

Disagreement Among Friends

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When was the last time you got into a disagreement with a good friend?

My oldest and his best friend got into a disagreement. I only know this because my son wanted to talk to me when he woke up (and when my oldest wants to talk you know something is on his mind). I asked him what was going on. “We got into a fight. I don’t think I owe him an apology and don’t think did anything wrong.”

I listened to his side of the story. His best friend and he were going to hang out after work. My son got an offer from a co-worker (his age) to do something after work. My son let his best friend know his plans had changed and they likely wouldn’t be able to hang out (several hours before they were supposed to meet). He thought it wasn’t a big deal and his best friend wouldn’t care, but it did matter because when my son reached out to tell his best friend to have a good time with someone else the following day his best friend replied, “screw you.” Clearly his friend was hurt.

We talked about changing roles and if he were his friend and his friend him would he have felt the same — hurt. Possibly, my son said. Had he thought about why he was digging in to not apologizing to his best friend — was it the need to be right? Or he really didn’t think he’d done anything wrong? We talked about he and his friend nearing a crossroads in their lives — the end of high school and their lives possibly taking them different places. It can be an unsettling time — what does the future hold, what will happen with the friendship that has meant so much, and what if this person is no longer in my life?

Growing up, becoming more independent, and figuring out who you are can feel scary and overwhelming at times, and the realization that you’ll be soon leaving the cocoon of youth terrifying and exciting.

I offered some different ways my son can try to work through this issue with his friend without necessarily apologizing — ‘you seem upset and I want you to better understand why, let’s talk when you’ve cooled down (or are ready).’ We talked about the need in any relationship to have hard conversations to gain better insight and find a path to resolution — whether that means the relationship stays in tact or not.

Losing a friend is always hard, fighting for a friendship (or relationship) can be harder, but you typically have a sense for the ones worth making the effort to save — whether you apologize or just hear each other out. Respecting each other enough to work through your differences and make it through to the other side.

How do you resolve issues with a friend (or spouse)? How are you helping your child when they have disagreements with their friend(s)?

I will be off next week celebrating Easter with family and friends and return in April.

The Luckiest

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What bit of luck have you had in your life lately?

Sun after rainy days, a friend reaching out unexpectedly, your child sharing about their day without prompting, are just a few of the things that remind me how fortunate I am.

I’ve traveled for work recently and felt loved when both my boys seemed genuinely happy to see me upon my return, even getting a big hug from my oldest (RARE!). 🤣 My oldest reached out for support and an ear to listen when he was having a tough day on the job. My youngest wanted to brainstorm with my husband and I regarding logistics of getting to and from a school trip that will require him to get himself home. A friend and I are planning a trip later in the year — it’s nice to connect more regularly and experiencing together the anticipation of the trip. Everyone is healthy and well. Nothing particularly special per se, but each warms my heart and makes me feel lucky and blessed (and undeservedly so). I wouldn’t trade any of it even for a pot of gold ☘️.

What luck do you and your family have in your life?

Decisions

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Certain decisions in our life can have big(ger) consequences than others. I’ve shared before about how my oldest is figuring out where he wants to go after high school — college or trade route.

He ended up applying to a couple of universities and is starting to get decisions from them. His most recent was a deferment. He was crushed (which makes me think he’s more interested in going to college than he’s let on), but we reminded him the school is still reviewing his application and there is still a chance he’ll get in.

The bigger thing I wanted him to take away from all of this is to think of where he goes next in different terms. If he doesn’t get accepted, maybe it will allow another student who will benefit more than he would (based on opportunities he has that others may not) from going to that school; or that the school may not be where he needs to be (I believe we are put where we need to be even when we can’t understand it at the time — I get this may be flawed thinking but it helps me in trying times). I also shared if he has his heart set on this school, he can go to another school for his first two years and then transfer. He has options, many others don’t.

Still, I feel for him. Rejection (real or perceived) is painful. He will learn from this (and his own resilience), regardless of what happens. I just continue to remind myself to walk with him as long as he’ll allow me to.

How do you support your child through a disappointing experience?

I’ll be off next week and back in March.