Category Archives: Autism Spectrum Disorder

Summer Exploration

Posted on by

0

What’s something new you’ve tried during the summer?

Our youngest is showing the city to our French exchange student. Taking him to popular tourists sites and having him experience a more typical day-in-the-life (going to the grocery store, checking out the library, helping around the house, hanging out on the deck). You can see my son learning him to host (while his dad and I work), and protect space for himself. It’s taken a few days, but he seems to be getting better at hosting, though I know there is a part of him that desperately wants to do whatever he wants without taking into consideration what our exchange student wants to do. As a spectrum kid, we keep encouraging him to have a more flexible mindset. Easier said than done, but we can see he is trying.

Our oldest is home for the summer, but out and about so much, it’s often like he isn’t here. If he isn’t working, he’s typically with his friends doing something regarding exercise, working on cars, or exploring. He recently joined some newer friends and went on a hike that had a 6000 ft elevation gain and required having an ice axe ( yikes!), and scrambling at that top. That’s too adventurous for me, but my son was eager to go. I was worried the entire day for his safety (would he push himself, get injured, or worse fall) until he texted to let me know he was okay. Worrying — something I suppose we’ll always do as parents, regardless our child’s age, right?

Summer is the longest stretch where the weather tends to be nicer (if not too hot) and ripe for exploring — a place or things to do. What exploring has your child or family done this summer?

Growing, Growing, Gone

Posted on by

0

How prepared is your child to go off on their own?

Our youngest decided to go to an overnight camp on the other side of the country. Worrisome enough for any parent, but throw in the fact that he’s 16, going on his own, and wanted to explore the transit in a large urban area he hadn’t explored (as much as he wanted) before made my nerves go through the roof. Not because my son isn’t capable — he navigated the tube in London flawlessly without ever consulting a map, but because he was going to be doing this on his own. What if he ran into a problem? Or people who were looking to take advantage of a younger person? It helps that my son is tall and people often think he is older than he is, but that can go both ways (good/bad) too. He showed us his itinerary and what he planned to do on his day in the city before the camp came and picked him up.

My husband and I spent time prepping my son. Bringing up scenarios and asking how he would handle or what he would do if he got into a situation where he needed help. It was a moment where we had to let him g(r)o(w) regardless how hard it was for us.

Because my son was going to the other coast there was a time difference and he would already be well on his journey before we woke up. He kept us posted on his stays, checking his luggage, paying train tickets, what routes he was on, etc. via text. I was calm but nervous. I looked forward to him being with the camp folks knowing he was safe.

The day went on, he was fine, and the camp got him safely mid-afternoon. I was relieved, and so proud of my son being able to do what he did. That night when we talked he shared how kind people had been, and how fortunate he’d been to make (train) connections and do all that he did. “We’re proud of you, you know?,” I said as we talked that evening, “but you should be even more proud of what you did yourself. You now know you can do this, and if traveling is something you want to do more of, you took a big step towards doing that.” He smiled and shared that he was proud of himself.

Gaining independence and confidence as you grow helps lessen the scariness of leaving the nest. Even though this mother bird still wants to protect her kids, I know I have to let them g(r)o(w).

How are you helping your child grow confidence in their abilities and independence?

Happy 4th. I’ll be away enjoying time with family and back later in July.

Chopping Wood

Posted on by

2

Every good campfire needs wood, kindling, and fire. Everything worth learning takes patience, persistence, and love.

My husband learned to chop wood for fires growing up, whether it was for heating the house, or for cooking and warmth camping. My youngest is now learning how to chop wood, though for a different reason. He’s going to a rail camp and will need to drive and pull railroad spikes as part of the experience. We thought chopping wood — using an axe and learning to handle the weight, and movement — would be a good place to start. We also realized we’ve had few opportunities to teach our boys the skill of chopping wood, since it’s relatively easy to buy bundles near camp sites, and our house doesn’t have a fireplace that uses logs.

My husband and son went into our backyard to practice. My youngest reminded me a bit of myself when I was young and learning new things, being cautious and getting frustrated during the learning process. My husband worked with my son. Being on the spectrum, he can struggle with fine and large motor skills particularly when learning something new. My son frustrated that he was struggling and my husband irritated his guidance wasn’t yielding the intended result. But that happens, right? As parents we try to guide our children through life and it can be infuriating when they struggle to (or flat out don’t) understand, or listen, or follow our direction. We can get angry (because we’re human and it’s super frustrating when our words don’t land), but it also provides us an opportunity to stop, step back, and determine how to go forward. Continuing to do the same thing over and over and expect the result to be different is the definition of insanity, right?

My husband and son reached an impasse and decided to resume chopping wood the following day. My son will get the hang of it. My husband’s words will get through, just slower than he’d like. While the experience might be a bit painful for them both now, the outcome — my son learning to chop wood, and getting himself ready for what he’ll be doing at rail camp. I imagine my son will be proud he can participate with greater ease at camp ( than if he hadn’t learned), and his father will feel good about teaching his son another skill he can use throughout his life.

Teaching your child can be challenging and rewarding. What have you taught your child that pushed your patience, but paid off in the end?

The Test

Posted on by

0

My youngest has been learning to drive for a little over a year. If it were left up to him, he’d never drive or get a car. He saw little value in getting a license. His father and I thought it important that he learn. “Having a driver’s license, and knowing how to drive is important.” He heard my words, but didn’t necessarily agree.

Practicing driving is nerve-racking for most parents. I desperately tried to keep my cool with him, but would occasionally (especially in the early drives) reach for the grab handle, or brace myself (maybe even close my eyes for a second?) as he drove too close to one side of the road or other, went too slow on the interstate, or struggled to change lanes with ease. I was proud that I rarely ever made an audible sound (unlike my own mom who was known for gasping, which made me more nervous, when I was learning to drive).

Our son finally got to a point where he could finally take the driving test. The first test we showed up for we learned he needed to take the knowledge test first (which we thought he’d already completed as part of the driving school classes he had taken), so we had to get that cared for. We practiced the questions night after night and a week later he took the test and passed. He was elated. Now we needed to take the driver’s test. We arrived to the appointment only to learn the evaluator was sick. He had been mentally prepared to take the test both times — aware of the importance of the test, and dealing with the nervousness you experience just wanting it over and behind you. He was disappointed but there was nothing we could do but reschedule the test.

We arrived at the testing facility. They said the test would take about 20 minutes. I found a nearby coffee shop and grabbed a drink to kill time. I was so nervous for my son. I wanted him to succeed. I knew he was prepared, but also nervous, and was unsure how it might go. I told him before the test that in the grand scheme of things the test means nothing. If he didn’t pass, we’d work on what he got wrong and he’d take the test again. It’s not like he was getting a terrible medical diagnosis or we were wondering where we’d sleep tonight, that it was just a test to prove he knows how to operate a car safely. I don’t know if it helped him, but it certainly helped me keep things in perspective.

He came back about 30 minutes later in the school car. He looked fine as he drove the car into the school garage. He came outside trying to keep a straight face. “You passed, didn’t you?” I asked. He smiled, “man, I was hoping to fool you!” His smile got as big as I’ve seen. He was so happy, tears of joy happy, relief, and pride that he had accomplished getting his license.

I was so happy for and proud of him. Being on the spectrum brought unique challenges to how he took driving instruction (particularly from his father and I), and learned how to drive, but he did it. The test seemed big and scary, but he overcame. Each success gives him that much more confidence in his growing independence. Now, if I could only get him to take the car out on his own (maybe even run an errand for mom?). 🥰

What’s a test your child experienced that helped them gain confidence from?

Laser Focused

Posted on by

0

What is your child into?

My youngest is passionate about public transportation and envisions himself working in this field. His passion, knowledge, and desire to learn more and make a positive impact in this field is inspiring. One of the super powers kids on the spectrum have is being clear on their likes and dislikes.

He has submitted an application to attend a specialized camp in this field, it’s competitive and unclear to us how many other potential campers he might be competing with. The application required him to share why he wanted to go to the camp and what he hoped to gain. He also had to get references. The application felt more like he was applying to college than a camp quite honestly. It was a good exercise though. It forced my son to get clearer on how to articulate why he wants this (attending this camp), and what he hopes to gain from the experience. It’s been so long since I was his age, I forgot how little you know at that age (on wording and phrasing), and needing help to take what’s in your mind down on paper so that the reader can understand.

My son also struggled with the references from two perspectives—identifying who would be good references and how to get the person to actually agree to be a reference. He struggled with what I think most of us do — understanding people see our positive traits and are more than willing to share their thoughts with others, vs. it brings a burden or causes an inconvenience. We worked on him identifying the references (two teachers and a community member), and helped him craft emails to reach out and make the ask. He was nervous asking, but thrilled when everyone he reached out to came back quickly agreeing to be a reference and one going as far as providing a written recommendation. It was wonderful to see his joy.

We don’t know if he’ll get into the camp, but are optimistic. Regardless of what happens he’s gained some skills (articulating his desires, asking for support), and knowledge (he can do it, and people are willing to help support). If he stays laser focused on continuing to grow in these areas, I believe he’ll be just fine. 🥰

How are you helping them to grow through their interest(s)?

Model Building

Posted on by

1

What is your kid enthusiastic about?

When my youngest was small (ages 3-8), he was obsessed with Cars (yes, capitalized, because I’m referring to the Pixar movie). 🥰 He developed a love of (lower case) cars as a result of the film (the best my husband and I can tell). This love of cars went up through his early teens. I can remember the countless hours of him playing with matchbox-sized cars (many in the form of Cars characters), lining them up, creating storylines, and making his own story with them coming to life (stop motion app, using mom or dad’s phone).

He’s older now and his tastes have changed. Cars (upper or lower case) no longer hold his attention. His loves have changed: geography, maps of the world, to trains, and then subway/transit systems. He is so interested (remember being on the spectrum, a super power is having clarity about your passion), he is participating in community board on transit for teens, various community events (openings, trivia nights, etc.), and wants to go into this field (city planning, transit advisor) as a career.

He has started collecting model subway cars to add to his already vast transit map collection. For his birthday, he asked for more models. He has traditionally wanted only completed models, but we thought we’d get him a kit and see if he’d enjoy building one. My husband has built model kits before (planes), so our sons have seen some of the joy this brings to their dad.

When our son opened the kit, we thought our chances were 50-50 that he’d want to build it, vs. having us send it back. I asked him if he’d like to work on it together and he said, “I’d like to work on this with dad because he’s done these things before.” I smiled—partially because he wanted to build it, and two, he wanted my husband’s help and not mine (I’m sure I could have helped him, but not sure I would have been the best partner). 😊

He and my husband set out working on the model subway car each night. Watching them work together on the build was something. There was excitement (for the model taking form), stress (oh no, we threw out the roof think it was trash, go check the recycling!), relief (thank goodness it wasn’t recycle pick-up week), and quiet love as they worked on the model figuring it out piece by piece. This model build may be the most special one for my son (and husband), since they built it together.

What have you and your child done together that’s been special and/or brought you closer?

Figuring Out Friendship

Posted on by

0

Have you ever parted ways with a friend?

Parting has been easiest, for me, when our locations and situations took us different places and nothing was explicitly said. The door open to reconnect or resume the friendship is there should the opportunity arise. It’s hardest when betrayal or some type of perceived hurt has occurred — coming back from it might not be possible. Then there is everything in between.

My youngest in high school has reconnected with an elementary classmate, and together brought a third, newcomer, into their group. My son enjoyed getting to know his new friend, even walking home from school a few times together, until he didn’t. He started seeing differences between he and this new person which made him take an inventory for what he wants in a friendship. This new friend appreciates women based on looks more than anything else, and likes watching/listening to crude humor on his phone. I can’t say this is untypical of any teen, but what struck me was how off putting it was to my son. My son shared his friend had been vulnerable with him, and he was in turn, but then the friend started teasing him about what he opened up about, making him regret sharing at all. The final ‘blow’ was when the friend kept trying to get my son to engage with him during lunch period, and my son wanted no part. My son shared, “I don’t think I want you to be friends with him anymore.”

I’ve often felt my son wanted more friends, but what held him back was some challenges he faced by being on the spectrum (such as missing social cues), what I found was my son having clarity in what he wants in friendship and not being willing to settle.

We talked about the differences between he and his friend, with the main one being my son had had the good fortune of having teachers, and caregivers that modeled healthy relationships and strong emotional intelligence — give him tons of tools for his toolkit. His friend, hadn’t had these same resources and may not have the knowledge my son has. The comparison I made was my son have a full tool belt, uniform, and protective gear, and his friend being naked. I shared this with my son, so he would have empathy for his friend. He could either help his friend grow with his knowledge or part ways because the effort wasn’t worth it or the friend wouldn’t be open to it. My son took it under advisement and decided he wouldn’t proactively engage this friend, but wouldn’t outright tell him the friendship is over either. So far it’s worked out. Neither boy has really engaged the other and the loss of a friendship doesn’t seem to bother my son (or the other boy, best we can tell), at all.

Ending a friendship is never easy. Making a new friend isn’t easy either. How are you helping your child navigate friendship?

Instagram Catfish

Posted on by

0

My youngest is on the spectrum and struggles making strong connection with his peers. This can be especially hard when you’re a teen, going through puberty, exploring your sexuality, and becoming more independent.

Our youngest son is one of the most ‘innocent’ people you could meet. His emotional intelligence is through the roof (he has empathy that is beyond compare), he loves animals, and spends countless hours online learning about world geography, other cultures, transit systems, and follows politics. He has very little interest in things I think most parents of teens fear — nudity/pornography, alcohol, or drugs.

My husband and I are aware our sons are on Instagram, but thought it too, particularly for our youngest, was innocent. We found out we had reason for concern when my husband saw our youngest son texting (chat function) with another user and appeared to be trying to hide what he was messaging from his father. My husband decided to inquire who our son was talking to while we were at the dinner table. My son got very quiet and seemed embarrassed. He shared he had started to confide some of his secrets to this stranger including his wants and desires because it felt ‘safe.’ When we challenged our son on who this person was, how old, etc., we learned this person was in their 30s. I appreciated my son’s honesty but was beside myself, as we’ve talked to our boys about being online and never sharing information or trusting who is on the other end, especially if you haven’t met or seen them in-person. I was more upset by the adult on the other end who allowed/continued the conversation even though he knew my son (based on his age being on his profile) was underage. Beyond the emotions I was experiencing, I could see how lonely my son felt, and how he’d been looking for an outlet to share his feelings and thoughts with others. outside mom and dad, and while I get it, it still terrified me.

My son realized the errors of his ways, blocked this ‘friend’ and gave me his login information so we can monitor the app and ensure he’s connecting safely with others his own age. He wants his independence but realizes he lost some of our trust but hiding this from us. We’ve always advocated for our kids to talk to us about anything and everything, even if it’s uncomfortable (for them or us, especially us (meaning my husband and I)). He feels like he lets us down, and we feel like we let him down (how didn’t we know?, how could we or should we have been helping him?, etc.).

We talked about making mistakes, that’s how we learn and grow, and while he’s becoming more independent, he still has knowledge to gain. He agreed, though still feeling embarrassed and ‘stupid’ for not knowing better. We just reminded him now he does.

Social media, like any technology has its pros and cons. I like that it allows users to connect on their interests or passions. I’m not a fan of some of the unforeseen risks inherent with letting younger folks (whose frontal lobe hasn’t fully formed) converse easily with folks who may be legit, or may be a catfish.

I’m still working to recalibrate my brain around what we learned. Some of my son’s innocence is gone, but I should expect that with age. I’m reminded I need to stay on top of how my son is connecting with others and getting his needs met (e.g., making friends that allow his to be himself, share openly, trust with secrets), and what my husband and I (and his therapist) can do to help.

How do you keep a pulse on your teen’s interactions on social media? How are you helping them know the dangers, while giving them freedom to explore who they are and their interests?

Relief

Posted on by

0

How did COVID impact you and your family?

I feel like my family was one of the lucky ones. We have a house (vs small space), with a yard, and an ability to get out and walk around our neighborhood without issue. I know for many others this would have been a luxury during COVID. I’m still coming to terms with the impact it had on our kids (we all are). How did this disruption change their course in life, or did it? How many of them are dealing with undiagnosed stress, anxiety, etc.? Including my own kids. They appear fine, but what if they aren’t?

A big part of parenting is helping your child and trying to keep them safe. COVID threw us all into unchartered waters and it feels like we’ll be finding out the true impact of the pandemic in the coming years. The pandemic impacted/continues to impact all of us.

Like many health care workers during the pandemic, our youngest son’s therapist decided to leave the profession. They needed a change. We couldn’t fault them. Finding a new psychologist for our son proved challenging—therapists not taking new clients, long wait lists, and more. And the days of “seeing if the therapist is a good fit” seem long gone, when you feel fortunate to have gotten an appointment with anyone at all.

After many calls, emails, and follow-up calls and emails, and research. We found someone for our son. What a relief. At least for now. My son is getting to know the therapist, and we’re providing feedback to them on what’s working for my son and what isn’t. What gives you even more relief is my son being advocating for himself and his therapist being open to the feedback.

How did the pandemic impact your child? What brings you relief now that we’re coming out of it?

I will be stepping away to enjoy Spring Break with the family and back later this month.

Learner’s Permit

Posted on by

0

Our youngest has gotten his learner’s permit and is starting classes and practices driving (with my husband and I first, and the driving instructor later on). The first drive he was understandably nervous.

First lessons with our boys started the same way — in a relatively empty parking lot, and alternate with a nearby community college that has even more empty space when school is out. We get them in the drivers seat, talk about the seat belt, seat and mirror positions, the controls (park, drive, reverse), and foot position — drive with one foot going between the gas, brake and emergency brake, before we start any driving.

The first lesson, with my youngest, was at the nearby community college. We had gone through the basics and he was ready to start his drive. He let his foot gently off the brake and we started to move forward. He drove in a straight line and I asked him to stop as we neared where he’d need to start a turn. I showed him how to turn the wheel and he did well. We continued to drive slowly around the parking lot. Early lessons are normally short (15-20 minutes in length) — for both our son’s sanity (his nerves are high), and my husband’s and mine (our nerves are pretty high too, though we try to mask them and appear we’re cool and collected). My son started to drive again, this time applying a little more pressure to the gas pedal. We were going relatively slow but when he came around the corner he over corrected and was driving towards the curb where some trees were. When I saw him start to panic, in my mind I said, “brake, brake, brake!”, but after he came to a stop up on the curb (but thankfully not in the trees) he said I said, “whoa, whoa, whoa!” 😬 My words added to his panic (clearly not my intention). Thankfully no damage was done, we and the car were fine. We concluded the lesson following.

On the drive back home we talked about the drive — what my son felt good about and what he needs to work on (based on what we practiced). My son gave me some good pointers in how I can better help him in the future. “Mom, my brain works differently. Hand gestures put my brain on overload. You telling me what I need to do is more helpful.” I love how clear my kid-on-the-spectrum is. It never occurred to me how teaching him to drive would be different from my older son. While driving on the curb scared us both, his ability to give me feedback to better help him made me feel more confident to help him succeed. Another time as the parent I’ve also become the student. While I have my drivers license I only have my learner’s permit in teaching my son. I need his feedback, regardless the situation, to be a better driving instructor, better supporter, better advocate, and better parent.

What are learning from your child? How is your child helping you be better?